If you or someone you know has just been diagnosed with cavernoma it can be a worrying and confusing time. It might be a relief to have a diagnosis that explains symptoms previously experienced, or something totally unexpected. We aim to support you by offering as much information as we can about living with cavernoma and signposting you about where to go and what to do next. Perhaps you might have questions to ask your medical specialist or you don’t understand what they have said. Some people find it useful to have this list of questions to ask their neurologist when they visit.
CAUK has developed special relationships with medical experts in the field of cavernoma. These experts often give up their valuable time to speak at our events to tell our members more about advances in the diagnosis and management of cavernoma.
We aim to support people affected by cavernoma in a number of ways from providing information, hosting an online forum, running events or simply being on the end of the telephone for a chat.