I was diagnosed 17 years ago and I felt so lost and alone for 15 years of them. I thought my family were the only people in the world dealing with this. Thankfully I got referred to a lovely surgeon who told me about CAUK. I no longer feel lost and confused. What a valuable resource.
CAUK has been the best source of information and support for me since being diagnosed. I’ve learnt so much about the condition and the symptoms we all experience. But I’ve also made a great group of friends who are always there to support each other and pick each other up on those frequent bad days. The Facebook group has helped me not to feel so isolated and I can’t thank everyone enough at CAUK for all the hard work they do.