Some of our members

CAUK exists to help and support those affected by cavernoma. We have over 1400 members, all of whom have been affected by cavernoma either directly or indirectly. The charity enables members to connect and share their experiences with each other and, through the collective voice of the CaverCommunity, CAUK is able to raise awareness and promote research into this little-known (but asymptomatically “common”) condition helping improve the lives of everyone impacted by cavernoma.

Here are accounts of a few members. Those who have had neurosurgery, “wait and watch” and carers.

Membership is free – click on the ‘Become a Member’ button to join. If you would like to have your story featured here, please contact us.


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