I was diagnosed with a cavernoma in October last year, after first displaying symptoms. Following a CT and MRI scan, it was eventually diagnosed as a small cavernoma. The consultant’s opinion was to monitor conservatively and have an MRI x 6 monthly. My most recent appointment in July showed some shrinkage of the cavernoma, which I understand is unusual. My consultant now thinks it may be a small AVM. It was explained to me that this may be possible to treat with radiotherapy/Gamma knife.
My consultant has recently had a meeting with his team to discuss a treatment plan, beginning with an angiogram to clarify the situation. I am currently waiting for further information.