Ffion was diagnosed at 11 months, following pneumococcal meningitis, with multiple brain cavernomas. Cavernoma are blood vessel malformations that can leak blood into the surrounding brain tissue and cause damage, like mini strokes. So far Ffion is doing well, she has some slight physical signs, however we don’t know how it will affect her over time – its a case of watch and wait. We are raising money for two organisations that are supporting us with her care. Great Ormond Street Hospital who are looking after her ongoing care, and the Cavernoma Alliance UK which provides support to sufferers and families facing this condition.
Our daughter is amazingly resilient – an absolute trooper, and we want to do whatever we can to help those helping her. This is a long term condition that she will have for the rest of her life, and it could strike at any time. But we dont want it to limit or define her, so we will support her in all ways and for always. We have some amazing people doing some really great challenges so please support them!
We would like to raise £3000 in total, 50% of the money raised will be donated to Great Ormond Street Hospital and 50% to Cavernoma Alliance UK. Ellie’s Virgin money page can be viewed at: http://uk.