11th International Cavernoma Alliance UK Forum (2017)

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Date/Time
Date(s) - 24/06/2017
9:30 am - 5:00 pm

Location
Ron Cooke Hub (Lakeside Room), University of York, York,

Categories


Our 11th International Cavernoma Alliance UK Forum is to be held for the first time away from London and in the north of England at the University of York. This will be an opportunity to especially benefit members in the north. For those who wish to attend from the south, fast trains from London to York take less than 2 hours.

The order of the day will be;

  • 9.30 –  9.40     Ian Stuart Ph.D., founder and coordinator introduction
  • 9.40 – 10.20    Dr. Jenny Thomson, Geneticist.
  • 10.20 – 10.45   AGM (David C S White, chair of trustees)
  • 10.45 – 11.15   Morning coffee
  • 11.15 – 12.00   Mr. Nitin Mukerji, consultant neurosurgeon, James Cook University Hospital,
  •                        “Operating on cavernomas in difficult places”.
  • 12.00 – 12.45   Dr. Connie Lee, President, and CEO, Angioma Alliance USA,
  •                       “Moving Toward Better Cavernoma Treatments”.
  • 12.45 – 2.00    Lunch
  • 2:00 – 2.15      Leon Rinkel – “What’s the quality of life for people with cavernomas? Results of a CAUK survey.”
  • 2.15 – 3.05      Workshop Session 1, please attend any of the following workshops;
    • Kim Larkin, How to appeal a benefit decision
    • Emma Tait, Symptoms and practicalities of living with a cavernoma – an interactive session
    • Susie Mackenzie, Singing for your body and brain
    • Connie Lee, Measuring quality of life with cavernoma: a focus group
  • 3.05 – 3.15      Comfort Break,
  • 3.15 – 4.05      Workshop Session 2, please attend any of the following workshops;
    • Kim Larkin, How to appeal a benefit decision
    • Simona Stankovska, Preparing for surgery and beyond
    • Susie Mackenzie, Singing for your body and brain
    • Connie Lee, Measuring quality of life with cavernoma: a focus group
  • 4.05 – 4.15       Comfort Break,
  • 4.15 – 5.00       Afternoon tea/coffee and networking.

If you would like to learn more click here, or book accommodation please clickhere

Also, don’t forget about our CaverMorning the following day. More information available from here

Bookings

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