Welcome back Helen Evans!
As we say goodbye to Sian as she starts her well-deserved retirement, we’re excited to welcome back Helen Evans, our former manager from 2018-2019.
December 2, 2022
As we say goodbye to Sian as she starts her well-deserved retirement, we’re excited to welcome back Helen Evans, our former manager from 2018-2019.
We are excited to launch our CAUK Christmas collection, offering you a wonderful range of festive purchases and presents that could suit anyone. But they’re so much more than that – by purchasing something on our shop, or by buying one of our gifts, you’ll be transforming lives and providing a brighter future for those affected by cavernoma & their families.
Sites across the UK and Ireland have so far recruited and randomised 42 patients for either ‘active treatment’ or ‘conservative management’. This takes us to 70% of our recruitment target for the study! We are almost there!
Not sending Christmas cards this year? We’ve got you covered. You can now order our brand new, completely FREE festive donation poster instead!
We are so grateful that, as a result of this epic fundraising challenge, Emily has donated a whopping £5000 to CAUK. Emily is a great friend and support to CAUK, having served as a trustee while living in London from 2013 – 2018. She has been involved in numerous fundraising initiatives over the years; she completed a 2013 half-marathon walk for CAUK, and was the first person to donate to our recent COVID-19 recovery fund.
While our amazing community was busy raising funds, the team at CAUK continued to apply for appropriate grants and funding from allocating bodies behind the scenes. We are really pleased to say that several of our applications have been successful. We have received substantial grants to continue our work.
Our peer support scheme – CaverBuddies – is expanding. The next online CaverBuddies training will take place on Thursday 19th Jan from 7pm. Please email
We are delighted to announce that a consortium, led by CAUK medical advisor Professor Rustam Al-Shahi Salman and comprising of a number of leading clinicians and patient advocacy organisation leaders – including David White of CAUK – has been awarded a grant to initiate the planning of an international ‘platform trial’ to test multiple potential cavernoma medications at a time.
It is often very difficult for patients to really understand exactly what happens in their brain, and with a cavernoma, when they have a bleed. What causes a bleed? Is a bleed the same as a stroke? What even is a haemorrhagic stroke? To answer these questions, we’re thrilled to be welcoming renowned consultant neurosurgeon, and friend of CAUK, Daniel Walsh FRCS for our next live webinar at 11am on Saturday 8th October.
We are delighted to report that the team at Kings College Hospital London has recently recruited its first two participants for the trial, with one patient randomised for ‘active treatment’ and the other randomised for ‘conservative management’. In equally exciting news, the team at Royal Hallamshire Hospital in Sheffield have recruited their sixth participant!
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458
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