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Today, March 15th, we come together with organisations across the country to recognise young carers.
Every day, thousands of young people across the UK help look after someone in their family who is ill, disabled or has a mental health problem or an addiction.

On Saturday 3rd of June we’re taking a team up Snowdon, the highest mountain in Wales, carrying our CAUK flag all the way to the summit!  It’s our hope whilst trekking to both raise awareness about cavernoma and raise funds for CAUK’s services.  

Every year on the 28th of February, hundreds of organisations around the world come together to raise awareness for rare diseases, and improve access to treatment and medical representation for individuals with rare diseases and their families.  It is an opportunity to advocate for the 300 million people worldwide living with one of the 6000+ identified rare diseases, and a chance to shine a light on what it is like to live with a condition that most people have never heard of. 

Raising awareness of cavernoma in the general public and among medical professionals is a priority at CAUK. That’s why, last week, our founder, Ian Stuart,

Our new address is; Cavernoma Alliance UK, PO Box 366, Watlington, Oxfordshire, OX10 1GF

Did you know that there are lots of ways you can donate to and fundraise for CAUK for free? 

With the cost of living crisis affecting many households across the country, you might be wondering how you can support those affected by cavernoma without spending any money…

As 2022 draws to a close, I want to take this opportunity to reflect on the past year at CAUK

There is no doubt that 2022 has brought its challenges; the COVID-19 pandemic, competition for funding and grants, and the increasing demand for our services left us in a difficult financial position. Through the hard work and contribution of our community and the CAUK team we have been able to face these challenges together.

Staff member Ailsa, who has a cavernoma in her right thalamus, sat down with the team at Medics4RareDisease to talk about her experience of cavernoma.

The first ever documentary about cavernoma is here! 
This very special documentary film, produced by our sister organisation in the US,  is the first of it’s kind and provides a unique insight into the lives of those affected by cavernoma.