News

Join our March webinar on ‘Oral Contraception, HRT and Cavernoma’. We’re really pleased to share that on Thursday the 28th of March, Dr Susanna Zuurbier

Join our February webinar on ‘The Spinal Cord and Cavernoma’. We’re really pleased to share that on Wednesday the 21st of February at 19:30 GMT,

We’re thrilled to announce UK wide in-person meet-ups for Brain Awareness Week, 11th – 17th March 2024.  These meet-ups will be hosted by our incredible

CAUK are proud to be one of over 50 charities that have come together to voice concerns over access to mental health services for those

‘How to successfully manage tinnitus with cavernoma’ 19:30 – 20:30 BST, Wednesday 25th of October 2023 Mr Edmund Farrar Do you suffer from tinnitus as

In case you didn’t already know, you can stream CAUK webinars at your leisure via our YouTube channel!

We’ve recently uploaded our Youtube channel with multiple recordings from this summer’s CAUK Annual Forum.  You can now enjoy a range of lectures by expert guest speakers from around the world on a number of cavernoma-related topics.  

Thanks to member feedback, and discussions with clinicians, it was brought to our attention that the advice DVLA’s advice to patients with cavernoma was different to it’s advice to clinicians. Earlier this year, we got in touch with DVLA to query their guidance on the rules around driving with cavernoma.  

In 2023 Cavernoma Alliance UK was approached by a filmmaker who has cavernoma, Lucy Gohm.  After her own experience with the condition, Lucy come to us in the hope that we could help her use her skills to amplify the voices of the cavernoma community by interviewing people with cavernoma and sharing their stories.  The result: two beautiful short films, featuring Emily and Sacha, and their stories of temporal-lobe and brainstem cavernoma respectively. 

This year we’re really excited to be bringing you speakers from the UK and US who are global experts on cavernoma.  Whether you are newly diagnosed or have been living with cavernoma for some time, we hope you’ll find these talks interesting and helpful.