Updated: 5th June 2020 at 09:56 As the situation with Coronavirus (Covid-19) develops, we all need to be thinking of ways to keep ourselves and our families safe. For people with Cavernoma, there is no increased risk of catching the virus. However, it is sensible to take reasonable precautions to reduce the chances of catching […]
The Cavernomas A Randomised Effectiveness (CARE) pilot trial CAUK is the Patient Group in a consortium also including senior clinicians with a special interest in cavernoma, led by our Medical Advisor Professor Rustam Al-Shahi Salman. The collaboration has been awarded £973,835 from the National Institute of Health Research (NIHR) to run the CARE pilot trial […]
The annual forum 2020 was run as a virtual conference this year, and was a huge success. We have three excellent session with international speakers. The videos are available on our YouTube Channel. Mr Chris Chandler, Consultant Adult and Paediatric Neurosurgeon at King’s College Hospital, London discusses Treatment of Brain and Spine Cavernoma at the […]
CAUK member and passionate cook, Sonal Abram has written an Indian-Italian fusion cookbook “Sonal Desai Dishes“. After recently seeking help from CAUK, Sonal has benefited from valuable information, support and community that our charity provides – and now she wants to give back! As a way of raising funds to help us continue the work […]
“Caver-no-more 2030” Essay Prize Sponsored by the Ernest Hecht Charitable Foundation We are delighted to announce that Cavernoma Alliance UK (CAUK) is holding its annual “Caver-no-more 2030” essay prize for papers on anything related to cavernoma, with an award of £500 for the winner. This essay prize is part of CAUK’s “Caver-no-more 2030” strategy with […]
It’s time to get creative! We’re hosting an ART COMPETITION to raise funds to SUPPORT NHS frontline workers during this pandemic. How it works; We want you to get your creative juices flowing to create ONE A4 PIECE with the theme ‘RAINBOWS FOR NHS’. This can be created using ANY medium you like – watercolours, […]
You all do an incredible job raising funds and we are extremely grateful. But so many of the usual methods have been taken away from you, and charities are facing a 40-60% drop in income. What can be done? Let us know of any ideas you have, but we also want to start here and […]
The NHS is running an excellent scheme, pairing up volunteers to call or message people who are self isolating at home. We would like to do the same, specifically for people living with Cavernoma, using volunteers who understand the condition. Would you like to volunteer to help? Or would you like someone to contact you […]
£1 million research application submitted, £10k award from the National Lottery Community Fund and more! To read click HERE.
In this edition – CAUK meets The Queen, latest research developments, member Chris shares his cavernoma journey… and much more! To read our Spring Magazine click here.