You all do an incredible job raising funds and we are extremely grateful. But so many of the usual methods have been taken away from you, and charities are facing a 40-60% drop in income. What can be done? Let us know of any ideas you have, but we also want to start here and […]
The NHS is running an excellent scheme, pairing up volunteers to call or message people who are self isolating at home. We would like to do the same, specifically for people living with Cavernoma, using volunteers who understand the condition. Would you like to volunteer to help? Or would you like someone to contact you […]
Updated: 17 March 2020 at 16:18 As the situation with Coronavirus (Covid-19) develops, we all need to be thinking of ways to keep ourselves and our families safe. For people with Cavernoma, there is no increased risk of catching the virus. However, it is sensible to take reasonable precautions to reduce the chances of catching […]
£1 million research application submitted, £10k award from the National Lottery Community Fund and more! To read click HERE.
In this edition – CAUK meets The Queen, latest research developments, member Chris shares his cavernoma journey… and much more! To read our Spring Magazine click here.
We’re delighted to share the January 2019 edition of our new look CAUK magazine. To read simply click here. In this edition we share two exciting opportunities to participate in research as part of our #CaverNoMore 2030 campaign. These opportunities are for people pre-op with a brain cavernoma or for anyone with a spinal cavernoma. […]
Announcement We are delighted to announce that Cavernoma Alliance UK (CAUK) is launching the “Caver-no-more 2030” essay prize for papers on anything related to cavernoma, with an award of £500 for the winner. This essay prize is being launched as part of CAUK’s “Caver-no-more 2030” strategy with an ambitious goal of finding a cure for […]
On the 8th and 9th November 2018, over 100 researchers, clinicians and pharma representatives from 5 continents are in attendance at the 14th Annual CCM Scientific Meeting searching for better treatments and a cure. This important conference brings together world leading experts on Cavernoma, through whose collaborative efforts we hope in time will us to […]
On the 19th October 2018 the Cavernoma Alliance UK Board elected Dr Caroline Seddon to be their new Chair, taking over from Dr David White who we’re pleased to say will be staying on as a Trustee. Dr Seddon joins CAUK with substantial executive and volunteer experience in the charity, membership, higher education and research […]
A new neurological patient experience survey is open, to collect vital information about the experiences of treatment and care, social care and welfare received by people affected by neurological conditions. The survey aims to collect enough data to positively influence future neurology services; including services in respect of cavernoma. About the survey The survey is […]