News

Summer Magazine

£1 million research application submitted, £10k award from the National Lottery Community Fund and more! To read click HERE.

Spring Magazine

In this edition – CAUK meets The Queen, latest research developments, member Chris shares his cavernoma journey… and much more! To read our Spring Magazine click here.

January Magazine

We’re delighted to share the January 2019 edition of our new look CAUK magazine. To read simply click here. In this edition we share two exciting opportunities to participate in research as part of our #CaverNoMore 2030 campaign. These opportunities are for people pre-op with a brain cavernoma or for anyone with a spinal cavernoma. […]

Announcement of Caver-no-more 2030 Essay Prize

Announcement We are delighted to announce that Cavernoma Alliance UK (CAUK) is launching the “Caver-no-more 2030” essay prize for papers on anything related to cavernoma, with an award of £500 for the winner.  This essay prize is being launched as part of CAUK’s “Caver-no-more 2030” strategy with an ambitious goal of finding a cure for […]

Angioma Alliance hosts 14th CCM (Cerebral Cavernous Malformation) Scientific Conference

On the 8th and 9th November 2018, over 100 researchers, clinicians and pharma representatives from 5 continents are in attendance at the 14th Annual CCM Scientific Meeting searching for better treatments and a cure.  This important conference brings together world leading experts on Cavernoma, through whose collaborative efforts we hope in time will us to […]

A warm welcome to Cavernoma Alliance UK’s new Chair, Dr Caroline Seddon

On the 19th October 2018 the Cavernoma Alliance UK Board elected Dr Caroline Seddon to be their new Chair, taking over from Dr David White who we’re pleased to say will be staying on as a Trustee. Dr Seddon joins CAUK with substantial executive and volunteer experience in the charity, membership, higher education and research […]

Neurological Patient Experience Survey 2018

A new neurological patient experience survey is open, to collect vital information about the experiences of treatment and care, social care and welfare received by people affected by neurological conditions. The survey aims to collect enough data to positively influence future neurology services; including services in respect of cavernoma. About the survey The survey is […]

Our new CEO, Helen Evans on her first day

We are delighted to announce that today is the first day for Helen Evans as our new Chief Executive. Helen brings a wealth of relevant skills and experience that we are confident will take CAUK through to its third phase of development, building on the success of our Big Lottery funded Big Step project. Until […]

CaverChat Closing

The CaverChat facility of our website will be closing from today, 17th September 2018, due mainly to lack of use. The majority of our members have chosen to use the facebook groups to communicate and so we highly recommend people visit those groups instead.

ANNOUNCEMENT – Appointment of Helen Evans as our new Chief Executive

We are delighted to announce the appointment of Helen Evans as our new Chief Executive. Helen brings a wealth of relevant skills and experience that we are confident will take CAUK through to its third phase of development, building on the success of our Big Lottery funded Big Step project. Until recently Helen was Chief […]

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