CAUK was founded in 2005 by Dr Ian Stuart. Ian had a bleed from a brainstem cavernoma twenty years earlier and became increasingly frustrated by the lack of knowledge amongst the medical community of the condition as well as how little support and information was available.
CAUK now has over 1600 members in the UK and worldwide. We aim to provide free support and information for all those affected by cavernoma including friends, family and carers. The charity also aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community. CAUK does this by organising various events such as our Annual International Forum in London, running social media support groups, signposting people for information and publishing a monthly E-Mailshot. We depend on funding from grants, foundations and the amazing fundraising efforts of our members and supporters.
Anyone can become a member by signing up.
Cavernoma Alliance UK is registered in the UK as a charity. Our charity number is 1114145.
Cavernoma Alliance UK is registered under the Data Protection Act as a Data Controller, registration number Z9714921, and at all times use our best endeavours to comply with the terms of the Act in all our dealings with your personal data.