Genetics for Patients: Finalising the questionnaire
You may have already completed questionnaires for the "Genetics for Patients" project over the last few months. This is a research study, which is being conducted by Marion McAllister, research fellow at the University of Manchester. The research is to develop a new questionnaire that will be a useful tool to help improve clinical genetics services for families affected by genetic conditions. Marion has now produced a final version of this questionnaire, which is made up of just 24 questions, selected from responses to the last round of questionnaires. Marion is very keen to have just 50-100 members of patient support groups to complete this version of the questionnaire at two time points, separated by 2-4 weeks, to run some final tests on the questionnaire.
If you have not completed the questionnaire yet, or even if you have, Marion would be very grateful if you would be willing to complete this shorter questionnaire, on two occasions, separated by 2-4 weeks, either on paper or online. A paper copy of the questionnaire, with a prepaid envelope for return, can be obtained from Marion (0161 276 8979 or )
To complete the questionnaire online, please go to www.geneticsforpatients.org.uk. To access the online questionnaire, you will need the following
Password = 1144
Please contact Marion if you would like any further information or if you have any questions about what the research involves.