To the Reader of this Website:

The total of the Cavernoma Alliance UK (CA UK) 2011 Christmas Appeal raised slightly over £3000. On behalf of the other CA UK trustees, we very much appreciate your contributions to our dwindling funds. In such a difficult financial time for us all, this was the first occasion that CA UK has appealed for help directly to both its members via email and the worldwide community through our volunteer-run website. With the rent of this office standing at £3000 that means CA UK can continue to pay the landlord! Thank you very much.  read more ...  (30/12/11)

More details on the design of the new public health system, including the role and responsibilities of local government in public health, the operating model for the new executive agency Public Health England and an overview of how the whole system will work, are published today.  read more ...  (20/12/11)

The Labour Peer Lord Dubb held a debate on support available for persons with neurological conditions on 8 December 2011 which you can watch below courtesy of the BBC (used with permission).  read more ...  (14/12/11)

Cavernoma Alliance UK has been involved in the creation of CCM guidelines to be published in February/March 2012. CA UK will at that time updating the site but during the interim period the final report has been published by Genetic Alliance UK who have been our partners in this venture. Their report Facilitating Networks of Expertise (Adobe/PDF, 559KB) is available online.  (13/12/11)

Cavernomas are clusters of abnormal blood vessels that form in the brain and spinal cord. A cavernoma can look a bit like a raspberry although that is where the similarity ends. As they form they press on the surrounding tissue to cause a range of symptoms from headaches to haemorrhages and seizures by way of slurred speech, double vision and tremors. It can affect all ages from the infant to the elderly. In some extreme cases it can even be fatal.  read more ...  (07/12/11)