U.S. Senator Tom Udall was joined today by Senator Jeff Bingaman in introducing legislation that would establish a Center of Excellence at the University of New Mexico to coordinate the treatment and research of Cavernous Angioma, a vascular disorder of the central nervous system that disproportionally impacts New Mexicans.  read more ...  (02/08/10)

Godsal met with Nancy Greig of Long Term Conditions Alliance Scotland recently to discuss how our charity might be able to work with them. You can read her report of that meeting below:  read more ...  (23/07/10)

Cavernoma Alliance UK are excited to announce that Professor Dr. Bertalanffy, the neurosurgeon from Switzerland, will be speaking at the London CaverHub 2010, Saturday 23rd October, Old Boardroom, National Hospital for Neurology and Neurosurgery, Queen Square, London, WC1. The programme will last from 10am - 1pm. Professor Dr. Bertalanffy will be discussing brain stem cavernomas. Cavernoma Alliance UK anticipates pastries, tea/coffee/juices will be served from 9.45am. Admission is free. Please RSVP as soon as possible to This is an important event so please "save the date."  (20/07/10)

Ian Stuart, our co-ordinator, has already begun receiving calls about how benefit cuts affect those with cavernoma. Here is a story relating to West Dorset District Council's attempt to cut our co-ordinator's housing benefit. For those members not relying on benefits, you may be interested in our co-ordinator's grim face, Cavernoma Towers (first floor window) and his house cat.  (11/07/10)

Ian Stuart, co-ordinator, attended the National Voices Assembly on Wednesday, 16th June 2010 of which Cavernoma Alliance UK is a member. Concentrating mainly on the speech (Adobe/PDF, 48KB) Health Secretary Andrew Lansley MP gave to National Voices on 8th June 2010 you can find National Voices response here (Adobe/PDF, 54KB).  (18/06/10)