Our co-ordinator, Ian Stuart, and one of our trustees, Frank Gent, recently attended the AGM for National Voices held in London during which a video was made by members called "Principles for Integrated Care" (Ian appears at the very end). This is to back up a set of principles for integrated care National Voices has developed with its members which they are asking policy makers and practitioners to adopt. These principles can help commissioners and providers to develop co-ordinated, person-centred care.  read more ...  (02/12/11)

Members may be concerned about reforms to the NHS. At the Neurological Alliance's AGM in London on Tuesday, 22nd November 2011 our co-ordinator Ian Stuart heard Amy Galea's presentation and has Ms. Galea's permission to reproduce her slides here (Adobe/PDF, 569KB) for you to download.  (25/11/11)

Our American sister organisation the Angioma Alliance recently held their 7th Annual Pathiobiology Workshop at Chantilly in France. Along with our American partners and the support of Genetic Alliance UK, CA UK part-sponsored this event.  read more ...  (22/11/11)

The Young Persons' CaverHub has been designed to meet the needs of both children with cavernoma and their parents, siblings and carers. They are run by Frank Gent, Member and Trustee; Brana Thorn, the YPC Coordinator and Ian Stuart, Founder Member and Co-ordinator. Subject to funding, we meet twice a year to give the children the opportunity of meeting each other with the focus on a fun day out for the children.  read more ...  (28/10/11)

The Board of Trustees, Cavernoma Alliance UK are pleased to announce that Mr. Richard Kerr, consultant neurosurgeon, John Radcliffe Hospital, Oxford, will give CA UK's International Brain Awareness Week Lecture on cavernoma in the Old Boardroom, National Hospital for Neurology and Neurosurgery, Queen Square, London, WC1, Saturday, 17th March 2012.  (10/10/11)