Cavernoma wears two hats. According to a medical study, asymptomatic cavernoma affects 1 in 600 people. Not a rare condition. But cavernoma is also symptomatic. 1 in 400,000 patients are diagnosed annually. In this case cavernoma is a rare condition. With this in mind, please raise political awareness of cavernoma. Usually, members of the board and/or regional representatives attend their respective parliaments/national assemblies. This year we do not have that opportunity. So PLEASE make your voice heard by downloading this template application, adding your name and sending to your MP.  read more ...  (03/02/12)

Dear Members of Cavernoma Alliance UK,  read more ...  (01/02/12)

The Lancet Neurology have published Dr. Rustam Al-Shahi Salman's et al article "Untreated clinical course of cerebral cavernous malformations: a prospective, population-based cohort study." Clicking here will take you to the article's summary. Dr. Salman has made the full text open access for our members. Please register to read the article in full. (It's free).  (02/02/12)

Hot from the Department of Health we have a document with the title "The new public health system: summary" (Adobe/PDF, 231KB) which will be of interest to members in their ongoing battle with the NHS.  (19/01/12)

CA UK have joined HealthUnlocked. As well as offering a further discussion resource for members, HealthUnlocked is one of the few sites where polls will be taken amongst its members appropriate to the fast-growing cavernoma community. You can visit our HealthUnlocked site here.  (19/01/12)