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Cavernoma Alliance UK

Helping the Cavernoma Community

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Cavernoma Alliance UK

Cavernoma Alliance UK is a charity created by people affected by cavernoma otherwise known as cerebral cavernous malformations or cavernous angioma. Our mission is to improve the quality of life for those affected by cavernomas through education, support, and promotion of research.

Our website provides:

We work alongside our parent organisation the Angioma Alliance and affiliated organisations Angioma Alliance Canada and CCM Italia.

Latest news from Cavernoma Alliance UK:
- Eighth International Cavernoma Alliance UK (CAUK) Forum (01/02/14)
- Videos of Brain Awareness Week Lectures (25/03/14)
- London Brain Awareness Week Presentation (24/03/14)
- Videos of Seventh International Cavernoma Alliance UK Forum (21/06/13)
Latest publications from partner organizations:
- Angioma Alliance Newsletter
- News from National Voices e-bulletin
- UK's Patient Charter (07/04/14)
- Health and Social Care Alliance Scotland (03/04/14)
- UK Strategy for Rare Diseases (02/04/14)
- Genetic Alliance - Latest Work, News & Events (02/04/14)
- James Lind Alliance Newsletter (01/04/14)
- Brain and Spine Partner Organisations Update (28/03/14)