Member of EURODIS Rare Diseases Europe
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Cavernoma Alliance UK

Helping the Cavernoma Community

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Cavernoma Alliance UK

Cavernoma Alliance UK is a charity created by people affected by cavernoma otherwise known as cerebral cavernous malformations or cavernous angioma. Our mission is to improve the quality of life for those affected by cavernomas through education, support, and promotion of research.

Our website provides:

We work alongside our parent organisation the Angioma Alliance and affiliated organisations Angioma Alliance Canada and CCM Italia.


Latest news from Cavernoma Alliance UK:
- 100,000 Avoidable Deaths (29/08/14)
- Videos of CaverFamilies 2014 (14/07/14)
- The effects of my brain surgery on my cognitive processes and counselling ability (14/07/14)
- Neurological Alliance and Cavernoma Alliance UK need your help! (08/07/14)
- Videos of Eighth International Cavernoma Alliance UK Forum (29/06/14)
- Videos of Seventh International Cavernoma Alliance UK Forum (21/06/13)
Latest publications from partner organizations:
- Angioma Alliance Newsletter
- News from National Voices e-bulletin
- National Council for Voluntary Organisations (01/09/14)
- Genetic Alliance - Latest Work, News & Events (01/09/14)
- Rare Disease UK - Implementation Plan for Scotland (11/07/14)
- Health and Social Care Alliance Scotland (09/07/14)
- Genetic Alliance - Latest Work, News & Events (09/07/14)
- Brain and Spine Partner Organisations Update (07/07/14)