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Cavernoma Alliance UK

Helping the Cavernoma Community

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Cavernoma Alliance UK

Cavernoma Alliance UK is a charity created by people affected by cavernoma otherwise known as cerebral cavernous malformations or cavernous angioma. Our mission is to improve the quality of life for those affected by cavernomas through education, support, and promotion of research.

Our website provides:

We work alongside our parent organisation the Angioma Alliance and affiliated organisations Angioma Alliance Canada and CCM Italia.


Latest news from Cavernoma Alliance UK:
- CaverFamily Manchester Study Day March 14th 2015 (12/09/14)
- Melonie Neal on BBC Radio Wiltshire (17/12/14)
- CAUK Christmas Cards (18/11/14)
- 100,000 Avoidable Deaths (29/08/14)
- Videos of CaverFamilies 2014 (14/07/14)
- Videos of Seventh International Cavernoma Alliance UK Forum (21/06/13)

CAUK does not endorse any form of management or treatment for cavernoma, nor any medication. Any individual's treatment, management or medication should be discussed with your doctor (GP, clinician) or other health-care provider
Latest publications from partner organizations:
- Angioma Alliance Newsletter
- News from National Voices e-bulletin
- Genetic Alliance - Latest Work, News & Events (10/12/14)
- Health and Social Care Alliance Scotland (27/11/14)
- Genetic Alliance - Latest Work, News & Events (10/11/14)
- Guardian Professional Voluntary Sector Network (06/11/14)
- Genetic Alliance - Latest Work, News & Events (06/11/14)
- Rare Disease UK - Latest Newletter (30/09/14)