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Cavernoma Alliance UK

Helping the Cavernoma Community

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Cavernoma Alliance UK

Cavernoma Alliance UK is a charity created by people affected by cavernoma otherwise known as cerebral cavernous malformations or cavernous angioma. Our mission is to improve the quality of life for those affected by cavernomas through education, support, and promotion of research.

Our website provides:

We work alongside our parent organisation the Angioma Alliance and affiliated organisations Angioma Alliance Canada and CCM Italia.

Questions about cavernoma?

A new national survey has opened, giving everyone affected by cavernoma the chance to submit their questions about the condition.

The survey is open to all, as well as all health and social care professionals caring for people with cavernoma. The questions you ask will help inform future research and will be highly valuable to researchers and research funders.

Please visit until the end of March to participate.

Latest news from Cavernoma Alliance UK:
- Ninth International Cavernoma Alliance UK Forum (01/02/15)
- Cavernoma Alliance UK International Brain Awareness Week Lecture 2015 (24/03/15)
- Rare Diseases Day 2015 - Official Video (18/02/15)
- International Brain Awareness Week 2015 Lectures (04/02/15)
- Preimplantation Genetic Diagnosis (PGD) and Prenatal testing and cavernoma (16/01/15)
- Videos of Seventh International Cavernoma Alliance UK Forum (21/06/13)

CAUK does not endorse any form of management or treatment for cavernoma, nor any medication. Any individual's treatment, management or medication should be discussed with your doctor (GP, clinician) or other health-care provider
Latest publications from partner organizations:
- Angioma Alliance Newsletter
- News from National Voices e-bulletin
- Rare Disease UK - Latest Newletter (13/03/15)
- Genetic Alliance - Latest Work, News & Events (13/03/15)
- Guardian Professional Voluntary Sector Network (23/02/15)
- Genetic Alliance - Latest Work, News & Events (09/02/15)
- Genetic Alliance - Latest Work, News & Events (28/01/15)
- Genetic Alliance - Latest Work, News & Events (10/12/14)