Up Coming Events
We run regular virtual events and in-person meet-ups, including information webinars and supportive sessions for people affected by cavernoma. As a small charity supported by volunteers, we do our best to reach as many people as possible and make events accessible to all.
Monthly Events
Community Chat (Open to all)
11:00 on the 2nd Thursday of every month (except August)
A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
Click here to register
Our online monthly events and webinars take place on Zoom. Not used Zoom before? Click here for a guide on using Zoom.
During our Community Chats, we often share helpful resources. Below are the links shared at our most recent meet-up:
Group Therapy
These themed groups run as a 4-part series over eight weeks, meeting fortnightly on Thursdays from 19:30 to 21:00. They offer a gentle, supportive space to share or listen. Open to UK-based CAUK members aged 18+ where the theme is relevant. The dates below are all for 2026:
- Supporters (carers): 23 Apr, 7 May, 21 May, 4 Jun
- Newly diagnosed: 11 Jun, 25 Jun, 9 Jul, 23 Jul
- Familial cavernoma: 18 Jun, 2 Jul, 16 Jul, 30 Jul
- Newly diagnosed: 27 Aug, 10 Sep, 24 Sep, 8 Oct
- Spinal cavernoma: 3 Sep, 17 Sep, 1 Oct, 15 Oct
- Brainstem cavernoma: 22 Oct, 5 Nov, 19 Nov, 3 Dec
To sign up, email helpline@cavernoma.org.uk. If no suitable group is available and you are non-UK resident, you are welcome to join our monthly community chat.
With thanks to Axion Neuromonitoring for generously supporting this service.
Webinars
Preparing for cavernoma surgery: what to expect’ – Lived experience panel
Wednesday 29th April, 7.30pm
Whether you have surgery coming up, are thinking about it for the future, or just want to understand what it really involves, this webinar is for you.
Join us on 29 April, 7:30pm (UK time) for a lived experience panel, where members of our community share what surgery was like for them, openly and honestly, followed by Q&A.
A chance to hear from people who’ve been through it, and feel more informed and less alone.
In-Person
Snowdon/Yr Wyddfa Climb for Cavernoma
Saturday 6th June 2026
Each year we climb Snowdon/Yr Wyddfa on the first Saturday in June to mark the start of Cavernoma Awareness Month. Our next climb will be on Saturday the 6th of June 2026. We’d love to have you join us as we climb the highest mountain in England and Wales. It’s a great opportunity to meet others from the cavernoma community, raise awareness of cavernoma and enjoy some spectacular views. To find our more click here.
Annual Conference
Saturday 3rd October 2026
Join us in central London at a fully accessible venue, for a full day of talks, discussion and connection for people living with cavernoma. The programme will feature leading clinicians, lived-experience sessions and opportunities to ask questions, as well as our AGM. Tickets are kept as affordable as possible, with free concession places available to anyone who needs one. Key sessions will also be recorded for those unable to attend in person. Full details are available on our registration page.
For emotional and practical support please contact us, please see our contact page