Up Coming Events
We run regular virtual events and in-person meet-ups, including information webinars and supportive sessions for people affected by cavernoma. As a small charity supported by volunteers, we do our best to reach as many people as possible and make events accessible to all.
Monthly Events
Community Chat (Open to all)
11:00 on the 2nd Thursday of every month (except August)
A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
Click here to register
Our online monthly events and webinars take place on Zoom. Not used Zoom before? Click here for a guide on using Zoom.
During our Community Chats, we often share helpful resources. Below are the links shared at our most recent meet-up:
Group Therapy
These themed groups run as a 4-part series over eight weeks, meeting fortnightly on Thursdays from 19:30 to 21:00. They offer a gentle, supportive space to share or listen. Open to UK-based CAUK members aged 18+ where the theme is relevant. The dates below are all for 2026:
- Newly diagnosed: 8 Oct
- Spinal cavernoma: 15 Oct
- Brainstem cavernoma: 22 Oct, 5 Nov, 19 Nov, 3 Dec
To sign up, email helpline@cavernoma.org.uk. If no suitable group is available and you are non-UK resident, you are welcome to join our monthly community chat.
With thanks to Axion Neuromonitoring for generously supporting this service.
Webinars
Lived Experience Panel – Spinal Cavernoma
Wednesday 18th November, 7.30pm Register
In this special webinar, three members of the Cavernoma Alliance UK community will share their personal experiences of living with a spinal cavernoma. Together, they will talk about their journey from diagnosis onwards, including symptoms, treatment decisions, surgery where applicable, recovery, and the physical and emotional impact of living with a rare condition.
For emotional and practical support please contact us, please see our contact page