About Us
Cavernoma Alliance UK, formed in February 2005 (as Angioma Alliance UK) and constituted as a charity in July of the same year, is comprised of cavernoma patients from all over the UK along with a board who keep us on the straight and narrow.
Cavernoma Alliance UK aims to provide a support group for those with cavernoma through events such as an annual forum in London and a mailing list. It also aims to makes the general public aware of cavernoma.
Cavernoma Alliance UK is registered in the UK as a charity. Our charity number is 1114145.
Cavernoma Alliance UK is registered under the Data Protection Act as a Data Controller, registration number Z9714921, and at all times use our best endeavours to comply with the terms of the Act in all our dealings with your personal data.